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FEATURE-R U OK? South Africans tackle AIDS with texts
Rebecca Harrison 2005-08-19
When AIDS counsellor Nobafunti Dondolo's mobile phone started beeping one Sunday afternoon, she knew someone was in trouble.
"It was a message from one of my clients who was very sick," said
Dondolo. "She was vomiting blood -- the family didn't know what to
do." With a flick of her thumb, Dondolo sent a top priority alert message
from her mobile phone to healthcare managers who within seconds dispatched an
ambulance to fetch the patient from a rickety shack in this sprawling township
near Cape Town. "She survived," said Dondolo, who is also HIV
positive. "This phone makes life so much easier." Unlike most HIV/AIDS
counsellors in South Africa, who toil with pen and paper to keep track of the
country's estimated 6.5 million sufferers, Dondolo and her colleagues rely on an
easy-to-use text message system.
Specially tailored mobile phones are programmed with a list of questions
aimed at monitoring patients on anti-retroviral (ARV) drugs: Is the patient
experiencing side effects? Is she eating healthily? Does she have clean water?
During home visits to AIDS sufferers, counsellors ask the questions and
immediately text the answers to a database at the University of Cape Town.
Doctors and health workers monitor the database and can respond to urgent
requests. Most importantly, counsellors count how many ARV pills are left and
forward the details, keeping tabs on whether patients are correctly taking the
complex cocktail of drugs and also encouraging them to be rigorous about their
medication.
REAL TIME
"It is real time," said Jalal Ghiassi-Razavi, project manager.
"The carers may not know the situation is critical but the doctors
receiving the message might and they can respond. A piece of paper won't be
dealt with until following week." South Africa is struggling with the
biggest caseload of HIV sufferers in the world and the government has been
accused of doing too little to halt the disease and treat those infected.
Researchers at the University of Cape Town started the text messaging project,
called CellLife, in 2000 to harness technology to help tackle one of South
Africa's biggest killers. CellLife works with the Desmond Tutu HIV/AIDS Research
Centre and clinic. Around 1,000 patients from Guguletu are logged onto their
system.
Patients say the technology makes the process more systematic. Knowing their
counsellor is just a text message away is also reassuring."At first it was
hard to remember to take all my drugs but I knew my counsellor was counting the
pills and would come and visit if I was too ill to travel to the clinic,"
said Eric Makubalo, 35, who discovered he was HIV positive in 1998 and started
taking ARV drugs last year.Makubalo's girlfriend died of AIDS seven years ago
after keeping her illness secret for fear of being ostracised. After that
Makubalo vowed to help others deal with AIDS and became a counsellor at the
Guguletu centre, where he is also a patient.
TESTING GROUND?
Only a fraction of those living with HIV in South Africa have access to
life-saving ARV drugs and even those who do get the pills sometimes fail to take
them as prescribed. Makubalo's colleague Lindelwa Burns, 32, is also HIV
positive but gets her drugs from a different clinic and says she envies patients
in Guguletu. "At my clinic they don't even do home visits they just screen
you, give you drugs and leave you to get on with it," she said between
coughs. Burns knows from experience that ARVs can cause nasty side effects and
says it is tempting to skip pills. "I know what would happen if I didn't
take my ARVs so I take them, but I know I could cheat because no one is
checking. I'm sure plenty of patients don't stick to the regime," she said.
CellLife has launched a second site in a remote village in South Africa's rural
North West province, and secured funding from pop star Elton John's AIDS
foundation to open five more.
The project harnesses the technology of one of Africa's most successful
growth sectors -- mobile phones. The number of Africans owning a mobile phone
has leapt some 1,000 percent in the past five years to about 8 percent of the
population. As well as monitoring individuals, researchers in the CellLife
project use data collected by counsellors to track trends and collate valuable
information in a field where comparatively little research has been carried out.
"It helps us tell if one particular batch of a drug or one manufacturer is
causing problems," said Ghiassi-Razavi. "It is a pity, but Africa is
really the testing ground for the fight against AIDS."
(Source: Alert -Net, August 18, 2005)
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