Someone once said that the true meaning of Christmas is not to open gifts, but to open our hearts. Despite the commercialisation of this holiday, it is always a time when communal spirit rises and spreads out through acts of charity and kindness.
In the daily round of their work throughout the year, the SA SURE project's Youth Ambassadors (YAs) – who form part of our district teams supporting the Department of Health's Adolescent and Youth-friendly Services (AYFS) – encounter many young people in dire and often tragic circumstances. While running a holiday programme at the end of 2019 in eThekwini, the YAs sought additional ways to relieve the plight of several orphaned and vulnerable youngsters – donating their own funds to do so.
Under the guidance of AYFS Champions, the YAs' role entails engaging with youth in facility-based Youth Care Clubs and running activities in AYFS Chill Rooms, to mobilise HIV Testing Services, distribute condoms, and educate groups about teenage pregnancy, gender-based violence and general health issues. When young clients in need are identified, the YAs facilitate their access to health and social services through referrals to the clinic and relevant government departments, and recruit them for support groups and psychosocial advice where necessary.
Ten more Youth Ambassadors were added to the eThekwini team in the latter part of 2019, bringing the total of YAs are supporting the facilities to 50. They worked through the festive season to strengthen AYFS implementation, creating a surge in condom distribution, which is so important because safe sex practices reduce HIV infection incidence and prevalence.
The YAs function collectively and in strong partnership with the eThekwini Metro Department of Health to respond to youth health needs. Nthabiseng Malakoane of the Metro's Health Unit explains: "We work with HST's Youth Ambassadors and AYFS Co-ordinators to implement the Department of Health's Adolescent and Youth Health Programme. During December 2019, we identified several child-headed households in Verulam with young clients in urgent need of support in the form of food and toiletries."
"One young girl, whose caregiver grandmother had passed away that month, was not sure how she would be able to return to school in 2020. As a team, we felt that it was important to take personal and practical action in such cases. We gathered donations from colleagues to fund supplies of groceries and school fees. The Youth Development Office in the eThekwini Mayoral Parlour helped with provision of school uniforms."
After giving a health talk to promote AYFS and HIV testing at Amaoti Clinic in Phoenix, the YA referred a young girl who was feeling ill for testing, and she was found to be HIV-positive. She had previously been enrolled on HIV treatment in Stanger, but had defaulted on her medication when she moved back to her late parents' house after being raped by her uncle. The girl was re-initiated on antiretroviral therapy and received adherence and psychosocial counselling, and her sexual assault case was referred to the Department of Social Development. Through staff donations, the YA team supported the girl with provision of groceries.
Youth Ambassador Mbali Mzobe secured sponsorship from Vodacom for school stationery, which was delivered to Montarena High School in Chatsworth and Ndukwenhle High School in Umlazi R section on 12 February 2020.
Learners with their Vodacom-sponsored stationery packs.
Our AYFS team members are diligent and passionate about recognising their young clients' dignity and translating this commitment into creative, tangible support. Nthabiseng concludes: "Together, we want to do more to help young people and give them hope."
Health Systems Trust, together with the TREATS consortium, and the London School of Hygiene and Tropical Medicine (LSHTM), offered a Masters Fellowship to a promising young statistician who is now pursuing a Masters degree in medical statistics at the LSHTM. At the end of 2020 he will return to South Africa for a one-year work attachment to the South African TREATS study site with the research programme of the Tropical Epidemiology Group (TEG) at LSHTM.
Read more about the TEG Fellowship here.
Meet Jacob Busang – South African TREATS TEG Fellow 2019.
1. Tell us a little bit about yourself? What program are you in at the LSHTM?
My name is Jacob Busang and I was born and bred in Shakunyaneng Village, in the North West Province, South Africa. I completed high school in 2014 at Thomas Makgatho High School (now called Mmamogwai Secondary School). I completed a Bachelor of Science (BSc) Mathematical Sciences at the Sefako Makgatho Health Sciences University (SMU), majoring in Mathematics and Statistics, in 2017. Followed by a BSc Honours in Statistics at SMU in 2018. All these degrees were conferred with distinction pass (cum laude).
On the 1st of April 2019 I started my internship with the National Research Foundation (NRF) and was placed as a Biostatistician at the Perinatal HIV Research Unit (PHRU), a division of WITS Health Consortium.
I am Currently doing a Masters in Medical Statistics at the LSHTM. It's a one-year full-time taught masters which commenced in September 2019.
2. When did you realise that you wanted to pursue a career in statistics or research?
At first my interest was in Actuarial Science, however, I pursued a BSc with the hope of eventually moving into Actuarial Science. Along the journey of my BSc I just fell in love with statistics and decided to pursue a career in statistics.
3. Which aspect of the health sector gets you most excited?
I'm most interested in applying my statistical skills and knowledge in public health with a focus on TB and HIV/AIDS given the high burden of HIV and TB in South Africa.
4. Where do you see yourself in 10 years?
By then I would hope to have completed a PhD and be Dr Busang and hopefully one of the leading statisticians in South Africa. I hope to be part of one of the leading research institutions doing important research that brings about positive impact and change to our lives and the health sector overall.
5. What is the best piece of advice you've received?
Explore the world and collaborate. Basically, this means that "no man is an island. No one is self-sufficient; everyone relies on others".
6. Who inspires you? Who are some of your role models?
I've been inspired by many people I've met in my life, the likes of Dr Mathews Katjene, Prof Solly Seeletse, Dr Neil Martinson, my friend Keatlegile Mabena (author of Breaking the Chains), the list is just too long. Last but not least is Prof Kennedy Otwombe (PHRU), who is the one who encouraged me to apply for the TREATS TEG Fellowship.
7. What advice would you give to students looking to pursue either studies or a career in statistics?
Statistics is a growing field and statisticians are in demand, especially in Africa. But one must not find oneself in a career simply because it is in "demand". A person pursuing studies or a career in statistics must demonstrate a love and interest for it, possess problem-solving skills and understand data and numbers. One will need analytical skills and the ability to apply critical thinking.
by Roma Ramphal, CCMDD Provincial Co-ordinator: KZN
Health Systems Trust (HST) has embarked on a journey with Technovera, a South African company founded by South African engineer Neo Hutiri, who invented the Pelebox Smart Locker to improve access to medicine for patients with chronic diseases in under-serviced communities.
The purpose of the Pelebox is to establish a cost-effective, convenient, quick and efficient alternative medicine parcel collection system.
Pelebox can accommodate up to 1 500 collections in a month, so that if a facility has fewer than this number of patients, all CCMDD medicine parcels held at the facility may be collected from the Peleboxes installed on its premises.
The Pelebox allows a facility to dissolve its Spaced Fast-Lane Appointment (SFLA) collection point − a facility-resourced internal pick-up point where patients registered on the Central Chronic Medicine Dispensing and Distribution (CCMDD) queue for their medicine parcels. The Pelebox thereby relieves the facility staff of managing the SFLA and helps to decongest the clinic.
By making patients' access to medicine more convenient, rapid and efficient, usage of the Pelebox also helps to increase their adherence to medicine, and thus supports South Africa's achievement of the second and third '90s' of the UNAIDS 90-90-90 targets.
HST assessed several potential Pelebox sites according to Technovera's criteria for installation − which include an undercover area with minimal exposure to the weather, an electrical power source, Internet connectivity, interoperability with existing CCMDD systems, and proper drainage for the cooling system. HST has installed Peleboxes at Prince Cyril Zulu Communicable Disease Centre, Savannah Park Clinic, Mzamo Clinic, Chesterville Clinic and Umlazi N Clinic in the eThekwini District of KwaZulu-Natal.
What's inside the lockers?
The lockers contain CCMDD-registered patients' medicine parcels packaged in brown boxes.
What type of medicines are offered through the CCMDD Programme?
The programme offers medicines that are prescribed for all types of chronic conditions.
Who can choose the Pelebox?
Any patient who is registered on the CCMDD Programme can choose the Pelebox as a collection-point option. The patient must have a cellphone number or access to a cellphone number through which to receive an SMS that provides him or her with a one-time Personal Identification Number (PIN).
When can a patient come to the Pelebox to collect a parcel?
If the Peleboxes are stationed outside the clinic, they are accessible 24 hours a day, seven days a week. At some clinics, the Peleboxes are installed inside the clinic and are accessible only during the clinic's hours of operation.
What happens if a patient loses his or her one-time PIN?
The patient can access the locker with his or her 13-digit ID Number and cellphone number. The patient can also request the system to resend the PIN.
What happens if the locker does not open?
The patient should enter the clinic and ask for the help of the Pharmacist Assistant.
Does the Pelebox system allow the patient to update his or her cellphone number when collections are made?
Yes, it does.
What is Health Systems Trust?
Health Systems Trust is a non-government organisation that supports health systems in partnership with the Department of Health to improve public health patients' experience of service delivery.
By Roma Ramphal, CCMDD Provincial Co-ordinator: KZN
A very exciting medicine parcel collection-point model has been pioneered by Health Systems Trust (HST) in order to increase the number of Central Chronic Medicine Dispensing and Distribution (CCMDD) external pick-up points available in under-serviced areas.
Providing the public with more options for convenient collection of their chronic medication allows for the decongestion of high-burden facilities and in thus the provision of quality health services to those requiring care, and supports patients' treatment adherence by ensuring that they have stocks of their medication as and when they need it.
The number of external CCMDD pick-up in eThekwini District has increased by 79 over the last year; however, there are still communities that are underserviced. To reach these patients, HST's mobile pick-up point vehicle will enable them to collect their medicines until a fixed pick-up point can be established in their area. The van can also service any area as the need arises.
In preparing to launch this initiative, numerous potential 'park and issue' sites recommended by public health facilities were assessed for suitability. Multiple challenges were noted, among which was the requirement for individual permissions and rental fees for parking the vehicle. In order to roll out a stronger model that would be expandable and sustainable, HST embarked on gaining approval from selected Municipal Libraries across eThekwini to park the mobile pick-up point vans in their outdoor spaces. Six library sites were chosen, based on the volumes of CCMDD-registered patients currently collecting in the clinics' Spaced Fast-Lane Appointment System queues in under-serviced locations.
eThekwini Municipality's Head of Health and Head of Libraries for eThekwini granted approval for use of the requested spaces and supported the implementation team's planning with useful recommendations.
Three 2019 Mercedes Sprinters were purchased and modified to facilitate this medicine parcel distribution plan. Each van will be used at two libraries, alternating mornings and afternoons, to ensure that every site has full cover for every day. Site evaluations of the libraries' grounds were conducted to ensure that safe spaces are available for the vehicles to park.
Identifiable by eye-catching branding, each van is insulated and clad to maintain an even temperature inside the vehicle, and are fitted with supplementary air-conditioners that maintain a regulated temperature while the vehicle is parked. The vehicles are fitted with pull-out awnings to protect patients from sun and rain. The medicine parcels are stored in lockable aluminium cages for transportation, and the vans are equipped with a tablet for use of the CCMDD electronic record system, SyNCH.
HST concurrently identified a space at the Durban Head Office in Westville in which to operate the CCMDD Receipt and Dispatch Office. Once it was equipped, the space underwent a pre-qualification assessment by the eThekwini Municipality.
To register this site and the vans as external pick-up points, HST signed a Non-remunerated Service Provider Service-level Agreement with the Department of Health. The required Project Plan, Risk Management Plan and proof of comprehensive insurance cover for the vehicles were submitted as Addenda to the Agreement.
Post-Basic Pharmacist Assistants with Code 10 driver's licences have been recruited as Drivers and Issuers for the vans.
This pilot project will begin in eThekwini as soon as approval from National Department of Health has been confirmed. The project will be piloted for six months and evaluated before replication in other districts is considered.
How does the Mobile Van Project work?
Community engagement and marketing:
To promote the use of the vehicles, and to inform patients when they can collect, their medication from the mobile pick-up points, HST has designed a CCMDD Van Schedule flyer that will be given to every patient who chooses to collect medicine parcels at any of the six participating Libraries. HST has also re-designed the eThekwini CCMDD Pick-up Point List and segregated pick-up points into suburbs to allow for convenient access.
The mobile pick-up vans feature CCMDD branding
Pharmacists in the tempreture controlled van
Medication parcels will be locked in these cabinets while they await collection
"My daughter's adherence support club has benefitted me just as much as it has helped her," says Sebenzile Vilakazi*
Walk into the adolescent support club at Pinetown Clinic on a Saturday and you might be surprised at the number of adults you see. While we know that parents and grandparents have a role to play in their children's adherence to antiretroviral treatment (ART), what we sometimes don't realise is just how much the older generation stands to gain from the clubs themselves.
That's because groups like this one are now running programmes to equip parents and guardians, as well as their children. Sebenzile lists parenting skills, life-skills coaching and emotional support as by-products of the adherence support club she has attended with her daughter for the past three years.
A sickly baby, Sebenzile's daughter was finally diagnosed as HIV-positive at the age of two, and was promptly initiated on treatment. She continued to take her ART syrup, moving on to a tablet when she was old enough.
"When she began to question why she was taking medication − around the age of seven − I reassured her that it was to treat the ulcers on her legs," says Sebenzile.
Disclosing her daughter's status didn't come easily to Sebenzile. She found it difficult to engage in conversation, fearing her child's reaction and volatile emotions. Already rebellious and disdainful of authority, an HIV-positive disclosure could push her daughter even further down the wrong path − or so Sebenzile thought.
Sebenzile points to some photographs of the adherence support club in the dedicated Adolescent- and Youth-friendly Services consultation room at Pinetown Clinic.
However, in 2013 when Sebenzile's daughter no longer wanted to go to school because the ulcers on her legs caused other children to discriminate against her, Sebenzile went to Pinetown Clinic and asked the nurse to assist her with the disclosure process. She also wanted to identify a support club.
The adherence support club she now attends with her daughter is run by Sister Gwavuma, the Adolescent- and Youth-friendly Services (AYFS) Champion at the Pinetown Clinic. The club allows adolescent clients to spend some time chatting and having fun together before they have their regular check-up and collect their medication.
At the same time, it allows the adults who attend to learn together with their children. Bolstered by the life skills and encouragement she received at the adherence support club, Sebenzile went on to start a business making and selling shoes, allowing her to support her family. She is now teaching the other parents about how to run small businesses.
The group of parents and guardians who attend the adherence support club are more than just acquaintances who enjoy each other's company once a month – they keep in touch regularly via a WhatsApp group which allows them to ask each other questions, remind one another of appointment dates, and provide the motivation to keep coming back.
And coming back is certainly having the desired effect – Sebenzile's daughter is now taking charge of her own treatment, ensuring that she is virally suppressed, taking her medication on time, and regularly reminding her mother of important dates for blood tests and follow-up visits.
"I will be very heartsore if the group closes," says Sebenzile.
But happily for her, Sister Gwavuma's dedication to the longevity of the adherence club means that this group and the others like it aren't likely to close any time soon.
Enquire at your local clinic about support groups and adherence clubs for adults and children on chronic medication, not just ART.
* Not her real name
Did you know that the best way to reduce new HIV infections is to ensure that patients remain on treatment and become virally suppressed?
An innovative case management approach, introduced by Health Systems Trust in uMgungundlovu District, is helping patients to stay in the system, adhere to their treatment, and become virally suppressed.
uMgungundlovu District in KwaZulu-Natal currently has the highest HIV prevalence in the world.
Case management focuses holistically on each individual and recognises the variety of factors that affect patients' ability to adhere to treatment, from transport and nutrition to depression and family problems. Case Managers develop a comprehensive plan for each client that focuses on both psychological and clinical care.
Phetha chatting with her case manager Nokwanda Mbele
Ntombenhle Phetha (33) was about to stop taking antiretroviral medication when an HST Case Manager contacted her and changed her mind.
"The Case Manager came to my house just after I'd decided I wasn't going to go back to the clinic, because I was very unhappy with the care I was getting there. It was always difficult for them to find my file and the nurses spoke badly to me. I'm also being treated for depression and they would call me for an appointment on one day for my psych meds and on another day for my ART. Sometimes I would queue for hours only to find they didn't have stocks of the medicine I needed."
Unemployment and poverty also leads to patients quitting ART because they don't have enough food at home. "It is difficult for people to take their treatment without eating a meal first. How can you take meds on an empty stomach?" says Phetha.
Phetha is a lesbian, which has created many family problems. "These problems led me to think about suicide quite often, which is why I got depressed and had to take these psych meds."
Nokwanda Mbele was assigned to Phetha's case and has been instrumental in keeping her on treatment. "Nokwanda had noticed that I'd been missing my clinic appointments. I told her I wanted to stop treatment or move to another clinic. Nokwanda promised she would take care of my case so that I don't have to queue for such a long time. She also arranged for me to collect both my treatments at one appointment. I feel like I have a champion, someone who is on my side when I come to the clinic."
Phetha says that she feels much stronger now Nokwanda is acting as an advocate for her as a patient. Nokwanda helps her to remember to take her medications and to attend her clinic appointments. "If I have problems, I can call and explain to her. This makes me feel I am not alone."
Once Phetha has completed 12 months on treatment, and is clinically stable and virally suppressed, she will graduate to the CCMDD programme, which allows her to collect her medication from a convenient pick-up point such as a retail pharmacy without having to queue at the clinic.
Siboniso Cele (39) is a security guard and the father of one child. He works 12-hour shifts in a post far out of town, which makes it difficult to get to the clinic during opening hours.
"This system is much better because now I queue for a maximum of 30 minutes. Before we would wait a very long time, even the whole day.
The Case Manager helps me to keep my appointments by phoning to remind me. After one year, if I am stable on my treatment, I'll be able to join CCMDD and my medication can be collected by someone else from a place like Clicks, or on my way through town to work, I can just stop and collect my medicine."
Cebisa Ngcobo (39) says that the new system not only helps her to maintain her treatment, it also keeps her safe from crime.
"Before this new system, I would have to queue at the clinic very early in the morning while it's still dark. If you came later, you would end up waiting the whole day. When we walked in the dark we would get robbed by the tsotsis who would take our phones and even steal our antiretroviral medicine.
But now my Case Manager helps me to set a convenient time for my appointments and I don't even wait more than 10 minutes. I'm so happy with this system that I encourage others who have been put off by bad experiences in the past to return to the clinic; I tell so many people about it that they say it's like I'm advertising. That's good. People must know that things are getting better now."
Jabulani Mkhize (24) is a chef and has been on ART for almost a year. He says that the introduction of the case anagement system has definitely helped him to adhere to his treatment. "My Case Manager will call to make sure that I can attend my appointment."
"If you know your status, you don't need to be ashamed. Life goes on."
He says that the stigma around HIV is decreasing in his community: "People are more educated about HIV now, to the point that we can even joke about it with our friends. There are also other people in our family on treatment. I am gay and I think there is much more stigma about my sexual orientation than my HIV status. Some of the counsellors and nurses at clinics should be educated on how to engage with us and how to ask questions sensitively."
"Case management entails closer and more regular communication with patients – proactively managing their condition before they withdraw or disappear from clinic engagement," says Nomvula Radebe, HST's District Co-ordinator for uMgungundlovu. "This begins the minute after diagnosis, so that there is no delay in linkage to care. The key actions are clustering, documenting and reminding – all the while carrying the patient through a supportive care plan."
To access the first edition of HST's Phakama Digest – which features an in-depth perspective on the technical aspects of implementing the HIV Case Management Model – go to: https://www.hst.org.za/publications/HST%20Publications/PHAKAMA%20DIGEST%20July%202019.pdf
Thandeka Radebe (31) is a Youth Ambassador, focusing on the lesbian, gay, bisexual, transgender and intersex (LGBTI) sector. She is originally from Mpophomeni in KwaZulu-Natal.
"As youth, we are not only infected and affected by HIV, but we are also located within a complex set of social ills such as violence, youth unemployment and gender-based discrimination, which are all root causes of HIV.
A young woman who tries and fails repeatedly to find a job is vulnerable to 'blessers' – older men with money. She needs to engage in this kind of transactional relationship to survive and help put food on the table at home.
We also see a sharp rise in HIV infection among young men who are not gay, but are sleeping with other men just to get money. These young men are not educated about keeping themselves safe when they have sex with other men.
Many lesbians in the townships do not feel safe in their own communities because of this thing called 'corrective rape' − when men attack and rape lesbians, saying that they will 'convert them to be straight'.
As a woman in South Africa, you are not safe. If you are a lesbian, you also have to worry about being targeted by people who want to rape and kill you for being a lesbian. These are the things we are facing.
So, it's important that we understand this full picture when we are trying to address HIV. If we don't understand this complex context, it will be difficult for initiatives to make any headway.
I'm lucky in that I personally have never encountered any real negativity or lack of acceptance for being lesbian; but across the country, especially in townships, I notice that there is still an 'us and them' situation between homosexuals and heterosexuals. People say that they accept you, but you will still hear homophobic comments.
Sometimes the people making these comments don't seem to understand how prejudiced they are. So, if they see a picture of a lesbian couple, you will hear comments like 'Oh, she's so beautiful. How can she be a lesbian? What a waste!' How is a woman being loved by another woman 'a waste'? Because she is not sexually available to men?
People also seem to think that if I'm a lesbian I'm not actually a woman. They literally say: 'I don't see you as a woman'. This is not real acceptance − it is maybe tolerance. Those are not the same thing.
There's a long journey ahead and a lot still to be done. People still think that 'intersex' is the same as 'transgender'.* Lesbians are still called 'gays', even though that is a word that refers to male homosexuals. Bisexual people are called 'twin plugs' which is very disrespectful.
I joined HST's team of SA SURE Youth Ambassadors because I want to educate young people about LGBTI issues and human rights in general.
We need to deal with the many root causes of HIV to put a serious dent into this epidemic.
* 'Intersex' is a general term used for a variety of DSDs (Disorders of Sex Development) are medical conditions involving the way the reproductive system develops from infancy (and before birth) through young adulthood.
* 'Transgender' relates to a person who suffers gender dysphoria or a feeling that they have been 'born into the wrong body'.
My name is Khawulani Dinangwe. I'm 32 years old and I am a Nurse Clinician at Health Systems Trust. I went to school in the deep rural areas, near Underberg and close to the Lesotho border. After school I moved to Pietermaritzburg to further my studies. I fell in love with nursing because of my background, coming from a community with a high prevalence of HIV and TB where I saw the terrible impact of these diseases.
I grew up wanting to be part of the forces helping to combat these diseases and help the community. I finished my Diploma in General Nursing in 2010, and then did community service in a hospital near my family home. In 2012 I did a Postgraduate Diploma in Primary Health Care, and completed a number of short courses such as Nurse-initiated Management of Antiretroviral Treatment (NIMART).
In 2017 I joined HST, which has given me the opportunity to reach my dream of working with communities to combat HIV and AIDS. Working for the SA SURE Plus Project has enabled me to work hands-on in our focus on reaching the UNAIDS 90-90-90 targets to help end the AIDS epidemic by 2020.
'90-90-90'; means that 90% of all people living with HIV will know their HIV status, 90% of all people with diagnosed HIV will receive antiretroviral therapy (ART), and 90% of those on ART will be virally suppressed.
Viral suppression means that the ART medication has reduced the number of copies of the virus in the person's blood. This does not mean the patient is cured; the HIV virus remains in the body, but in such small quantities that it is undetectable. If the person stops taking ART, their viral load will increase again and they can become very ill.
One of the challenges we face is the high rate of clients defaulting on their treatment, or clients not attending follow-up appointments at the clinic to collect medication. One of my clients, a 20-year-old woman, had been on ART for three months, but during the fourth month she missed her appointments, and came to the clinic two weeks later than scheduled. When I asked why she hadn't been to fetch her medicine on time, she said that she had "extras" at home.
When I asked why she still had medication left over, she replied that when she started ARVs, she was unable to take them at home because she was afraid that her parents would find out and she would be in trouble. We gave her ongoing counselling and she decided to start again, stick to the regime and keep appointments.
Clients like this woman need the help of support groups and ongoing counselling, especially when families respond negatively to disclosure of HIV or taking ARVs. It is really important that thorough counselling is given before ART initiation to make sure that clients can raise and discuss any concerns or obstacles they might face. Now we give her counselling every time she comes to collect her medication.
It's also very important to form adherence clubs in the community. This helps to reduce stigma, provides peer support, and guides clients in adhering to their medication so that they can be healthy and strong.
Thandeka Simelane (24) feels as if HIV was a bullet she couldn't dodge.
She did her best, went to school, stayed faithful and found a job as a domestic worker to support her family. She met her partner and they became engaged in 2013.
"He paid half my lobola and we had a child in 2016," she says. "I thought everything in my life was going well. Then last December my boyfriend went home and while he was away he cheated on me with someone who is HIV-positive. My cousin died of AIDS some time ago, and I still remember it. I don't want to die like that."
Shortly afterwards, community health workers were doing door-to-door HIV testing and she agreed to be tested, with the thought of her fiancé's infidelity on her mind.
"I'm so glad Mfundo (the community health worker) came here because I am pregnant again and too busy working and coming home late, so I would not have been able to go to the clinic for testing. My fiancé wasn't home so I asked him to come back on the Sunday. Mfundo counselled us both together and then tested us."
For Simelane, her initial horror at getting a positive HIV diagnosis has given way to calm acceptance after counselling. "I learned that I can give birth to an HIV-negative baby and I am already enrolled in PMTCT (prevention of mother to child transmission) so I am not worried. I know that if I take my medication I will be fine."
While she is clear that this is not what she wanted for her life, she feels it was almost inevitable. Her goals were a good education and a better life for her children.
"If it wasn't for my fiancé I would still be HIV-negative. But now I am staying with him because we are both HIV-positive. Even if I leave this man and find another one, they will want to have unprotected sex. So it's better we don't keep spreading this thing."
Simelane says that the outreach by community health workers like Mfundo* is invaluable. "I can't disclose to my family because they talk too much and will tell the whole world. I'm afraid of going to the clinic because the sisters shout at you and say 'why are you having sex so young?' It's better to have people like Mfundo who come to our house."
Simelane says that one of the unexpected advantages of being tested and treated as a couple is that she and her fiancé are now communicating much better with each other.
"Can you believe it?' she asks, seized by peals of sudden laughter. "Since we were diagnosed we have been using condoms – and he says it feels just the same!"
Mfundo Dlungwana is just 34, but he has seen it all in his young life. He has been a Lay Counsellor for six years and works for AFSA (AIDS Foundation South Africa). AFSA uses strategies such as door-to-door testing to ensure that they reach as many clients as possible.
"Men don't want to be tested, but as a man I know how to explain to them the importance of testing. I explain to them that HIV is treatable and is just like any other chronic condition such as diabetes. Men say 'we came from a vagina and that is how we will die'. I remind them that it is mostly men who infect women so they need to take responsibility."
Dlungwana says that poverty is a key driver of HIV in uThukela District. "Most of the 'sugar daddies' in this district work in government; they have cars and lots of money. Even if they know their status, they won't use condoms. So you will see a man who is about 45 with a young woman of 16. It's very common."
This week we will be profiling some our incredible staff who work at the coal-face of our HIV response.
Today we introduce Hlengiwe Masuku, Psychosocial Care Advisor in eThekwini.
“I provide support and counselling for clients who are newly diagnosed with HIV, as well as supporting youth clubs in peer education, and referring clients on to other government services like accessing childcare grants.
My role involves a lot of work with the youth on HIV, sexually transmitted infections (STIs) and teen pregnancies as well as HIV testing and treatment.
After the patients learn their status, I come in to do ‘deep counselling’, because most of the time, they are in shock. I ensure that by the time they leave the health facility, they have a clear understanding of what is going on and what is going to happen in their life. If they take treatment, they need to know all the side-effects. I also do follow-up to see how clients are getting along with their treatment − especially the youth, as they tend to be in denial about HIV.
Even if clients test negative for HIV, I still do health talks to tell them how to stay negative and how to protect themselves, and also educate them about STIs and pregnancy.
We face different challenges with different groups of clients: Men don’t like to test at all. They have a fear of knowing their status, a fear of stigma. Men really don’t like to come to health facilities because they say they are treated unfairly. They will come and test and be initiated on antiretroviral treatment, but then you never see them again. This means that their viral load will never be suppressed and they will continue to spread the virus.
Even if they start treatment, it is difficult to get them to adhere to the regimen because they don’t want to be seen going to the clinic and coming back with a parcel of medication. They believe that everyone will say that they on ART, even if they are picking up pills for another chronic disease like diabetes.
One of the initiatives to assist our clients with this concern is the Chronic Central Medicines Dispensing and Distribution (CCMDD) programme, which enables patients who have been stable on their medication for 12 months to collect pre-packaged medication discreetly from a number of convenient pick-up points, including retail stores like Clicks.
I’d say that about 80% of youth understand what HIV is. The problem is that knowledge does not protect them from the circumstances in which they find themselves. If a teenage girl lives in a home where there is no food, she will have transactional sex to get groceries. Those older men hold all the power, and make it clear that they will not buy groceries for the girls if they don’t have sex without a condom, so it’s difficult to say that these girls are making a choice. Do they let the family starve or do they put their own lives on the line? Others are attracted to older men because they want fancy things like weaves and cell-phones. They feel they will never find jobs anyway, so this is their only chance to get the things they see others having.
I find it very sad to see more teen pregnancies and HIV infections resulting from this trend.
The youth are also affected by the culture of crime and violence in South Africa. I had a young client who came from the rural areas and was totally lost. Her father had been quite a tough guy, who owned a shebeen. He was shot dead and after he passed, she went looking for men to play that protective role. She ended up with three children and being infected with HIV because she was looking for love which she was not getting from her mother at home.
Many of our children have lost their parents in terrible conditions or have even been abandoned by their grannies. We need to remember that these children are orphaned, growing up without love or guidance, and then going on to repeat the cycle with their own children.
We must reach the 90-90-90 targets and ensure that 90% of HIV-positive people know their status and are adhering to treatment so that they become virally suppressed and can no longer pass on the virus.
I do this work because I want to make sure that young people have the opportunity to live full and healthy lives and leave a strong legacy of children who know their value in this world.”
HEALTH SYSTEMS TRUST - CONTACT DETAILS
34 Essex Terrace, Westville, Durban, 3630
+27(0)31 266 9090